Tag: disease

So What About Ed?

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So what about Ed?

In my post from earlier in the week, I promised a little “unfolding” around Ed Dobson and us.

Here goes:

  • Ed is a representation of us all. You might think because you don’t have ALS, or some other disease, that you don’t have much in common with Ed. The true reality is your diagnosis hasn’t been delivered yet. Sorry to break the news, but no one gets out alive in the span of life.
  • I’m really concerned about the number of people I know, and don’t know, who walk around the planet acting immortal. The keyword is acting here. It is a sure recipe on how to miss out on your notes (love affairs, songs composed, three-point shots to take). These are the notes that only you can play.
  • The tangible things of life are often just substitutes for the notes. We’ve been sold a lot of BS that the truth of that statement is not truth at all. For example, your career title does not make you real. It’s your notes that make you real. Some call it marketing, some call it opinion, but the truth remains.
  •  Don’t wait until death or disease makes an impromptu appearance, before you choose to do what you know you need to do. Arrogance keeps many of us from doing what we need to do. We feel we’ve got time, we feel someone else should make the call, we cry that we’re too busy. Ed was and is blessed that he got more time than many. Most people lose the game when such a grave diagnosis arrives. George Michael once said, “there are those who have lost, and there are those who haven’t lost yet.” What are you waiting for?
  • I’m renewed in my belief and actions that we must play the notes we’ve been given. My friend Marc once told me that people will buy the you found in the endeavor. The you is found in the notes.

Waiting For the End to Begin

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Saw a young lady yesterday who has multiple myeloma. She is young. I found out about her condition a few months ago, but hadn’t talked to her since the diagnosis. I listened a lot. She spoke much about the importance of prayers, doing things to get through chemo, and doing things that always seemed ok to put off. No time to take for granted now. I was happy to sense that from her.

In my interaction I thought about how we modern men and women often wait until the end, before we start a beginning. It seems like the word late has vanished from our vocabulary. I won’t even go to the words too late. I guess when you feel invincible, time is always on your side.

You do realize we’re all terminal.

I don’t dance with any partner other than life. It feels right and natural to do this. So much of what we do should be about holding on loosely and letting go. We don’t own anything anyway. Sure it feels strange in the beginning and many will think you’ve lost your mind, but it’s what fits. No career, no amount money, no relationship, and no amount of notoriety will be able to substitute. No use in settling for the substitute.

I hope that young lady will be counted as a survivor one day. I also hope that her new beginnings will stick. This is a choice after all, to live over the sun.